Monday, February 27, 2017

Donor sibling registry: matching donor-conceived sibs

The Donor sibling registry is a matching service to help identify half siblings of  "donor conceived people," i.e. people who were conceived from donor sperm or eggs, and who may know only an anonymized donor number.  If your numbers match, you might want to arrange a meeting...

Sunday, February 26, 2017

Who can be a common law couple?

Being a couple is about a lot of things, including survivor rights and medical visitation and decision-making rights...

Inseparable Israeli Sisters Fighting to Be Recognized as a Common Law Couple
"A day in court with two nonagenarian sisters, refugees from the Holocaust and constant companions, who seek the unprecedented status so that the one who lives longer can inherit the other's old-age allowance."

"The claimants, it turned out, are asking the National Insurance Institute to recognize each of them as being eligible to receive a next-of-kin allowance upon the other’s death. Effectively, they want the NII to grant them common-law status recognition.
A disturbing thought ran through the judge’s head. “Are you telling me that …” she said to attorney Igra who, guessing her thought, dismissed it with an “Absolutely not,” and placed before the judge a court ruling stating that sexual relations are not a condition for common-law recognition.
Relieved, the judge went on to sum up the lives of the two sisters in a few sentences, as she began reading her judgment. The claimants have lived in the same unit of a protected housing project since 2007. The claimants never married, are single and have no children. The claimants have a joint back account, and their old-age allowances have always been deposited in that account. The claimants manage their income and their expenses from the same bank account. The claimants purchased adjoining burial plots. The claimants’ only journeys abroad took place between 1995 and 1998, and always together, according to the Interior Ministry’s border inspection records.
"The Labor Court, though acknowledging the innovation and feasibility of the claim, did not accept it"

This request was not accepted by the Israeli court, but it is food for thought.

Saturday, February 25, 2017

Interview on Who Gets What and Why: American Monetary Association, Jason Hartman

This interview was conducted some time ago, but I just now saw the link...and listening to it just now, it seems to me that we had a pretty interesting discussion.
(the link at the title below will take you to the podcast...)

AMA 126 – Who Gets What and Why, The New Economics of Matchmaking & Market Design with Alvin Roth

Jason Hartman talks with Alvin Roth, Craig & Susan McGaw Professor of Economics at Stanford and author of “Who Gets What and Why”
Key Takeaways
[5:28] – what aspect of the real estate market surprises him the most
[11:45] – The market of organ donation
[16:24] Repugnant Transactions
[20:51] Government’s role in contracts
[24:56] Signals and two kinds of messages we send

Friday, February 24, 2017

Reducing disincentives to living organ donation in New York State

Josh Morrison of Waitlist Zero is pictured in this encouraging story:

Albany considers bill to pay live organ-donors' costs
Supporters want to remove economic barriers that they say keep many potential donors from coming forward

"A new bill could make New York the first state in the country to directly compensate living organ donors—who typically donate a kidney or a portion of their liver to a transplant patient—for lost wages, child care and other expenses.

The Living Donor Support Act, introduced by Democratic Assemblyman Richard Gottfried of Manhattan and Republican Sen. Kemp Hannon of Long Island, chair of the Senate Health Committee, has broad support from lawmakers. It already unanimously passed Hannon’s committee, and it has 18 Senate co-sponsors and 27 Assembly co-sponsors.

In addition to helping donors with expenses, the bill seeks to increase education about the option of living transplants for patients, who are disproportionately poor and members of minority groups.

“Our goal is to make transplants easy to ask for and easy to give,” said Josh Morrison, executive director and co-founder of Waitlist Zero, a Brooklyn-based nonprofit that championed the bill. Morrison donated one of his own kidneys as a good Samaritan five years ago at the age of 26.

For dialysis patients in particular, getting a kidney transplant from a living donor could save money and improve their quality of life, but patients often aren't informed of that option, Morrison said."

HT: Frank McCormick

Thursday, February 23, 2017

Fifty shades of stigma: repugnance for legal but kinky sex

As a wider variety of sexual behavior becomes free of legal restrictions, some are still misunderstood or regarded as repugnant by much of the population, including medical professionals, even as they are featured (gently) in popular books and movies like “Fifty Shades of Gray.”

The Journal of Sexual Medicine explores the extent to which practitioners of kinky sex may feel that they cannot be frank with their physicians:

"Fifty Shades of Stigma: Exploring the Health Care Experiences of Kink-Oriented Patients"
Jessica F. Waldura, MD, Ishika Arora, BS, Anna M. Randall, DHS, John Paul Farala, MD, Richard A. Sprott, PhD

Abstract: "The term kink describes sexual behaviors and identities encompassing bondage, discipline, domination and submission, and sadism and masochism (collectively known as BDSM) and sexual fetishism. Individuals who engage in kink could be at risk for health complications because of their sexual behaviors, and they could be vulnerable to stigma in the health care setting. However, although previous research has addressed experiences in mental health care, very little research has detailed the medical care experiences of kink-oriented patients."

Results: "...The study found that kink-oriented patients have genuine health care needs relating to their kink behaviors and social context. Most patients would prefer to be out to their health care providers so they can receive individualized care. However, fewer than half were out to their current provider, with anticipated stigma being the most common reason for avoiding disclosure. Patients are often concerned that clinicians will confuse their behaviors with intimate partner violence and they emphasized the consensual nature of their kink interactions."

Wednesday, February 22, 2017

Hardy Hendren and the resident match

The journal Surgery has published (early online) an account by Hardy Hendren, recounting the drama at the origin of the resident match:
The 1951 Harvard student uprising against the intern match
Don K. Nakayama, MD, MBAa, , , W. Hardy Hendren III, MD, FRCSb
a Departments of Surgery, Florida International University, Sacred Heart Medical Group, Pensacola, FL
b Harvard Medical School, Massachusetts General Hospital, and Children's Hospital Boston, Boston, MA
Available online 18 January 2017

Here's the first paragraph:
"In the fall of 1951, a group of Harvard medical students led by W. Hardy Hendren, III organized a national movement against the newly instituted match that would assign graduating seniors to hospital internship programs. Before then, hospitals with intern positions to fill rushed to secure commitments from students, who in turn accepted the first decent offer that came their way. Knowing that students could not risk waiting for a better offer, hospitals pushed them into making early commitments. When some students began getting offers in their junior and sophomore years, medical schools, professional groups, and hospitals organized the National Inter-association Committee on Internships to deal with the issue. The intern match was thus organized and scheduled to take place in 1952. When the plan was announced in mid-October 1951, Hendren recognized that the proposed algorithm placed students at a disadvantage if they did not get their first choice of hospitals. Facing resistance at every step from the National Inter-association Committee on Internships and putting his standing at Harvard Medical School at risk, Hendren led a nationwide movement of medical students to change the procedure to one that favored students' choices. Their success [less than] 1 month later established in the inaugural match the fundamental ethic of today's National Resident Matching Program to favor students' preferences at every step of the process."

In my book Who Gets What and Why, I wrote about Hendren and these events in part as follows p138):
"One student who noticed this flaw in the proposed design was Hardy Hendren. He was preparing to graduate from Harvard Medical School in 1952, just as the clearinghouse was getting started. When he told me about it years later over lunch in Cambridge MA, he had already retired (in 1998) from Boston Children’s Hospital, where he had been chief of surgery. (His colleagues had given him the nickname “Hardly Human,” for the long, complicated surgeries he was able to conduct.) Hardy entered the Navy during WWII, in 1943 when he was seventeen, and trained as a pilot before returning to college and medical school. As you can imagine, with that background, as he prepared to seek his first job as a doctor, he wasn’t shy about expressing his concerns that the clearinghouse was unsafe for students.
"Hardy also wasn’t one to wait around for bureaucrats. And so, with a group of fellow students, he formed the National Student Internship Matching Committee, which organized opposition to the proposed algorithm. The Committee recommended that it be replaced with a different way of processing the preference lists to determine a match: it became known as the Boston Pool Plan. This was, in fact, the algorithm that was finally implemented when the clearinghouse was used to match students and positions in 1952."

After some discussion of stability, and the fact that the Boston Pool Plan is equivalent to the hospital proposing deferred acceptance algorithm, I wrote (p141):
"Back in 1952, economists hadn’t yet figured out any of this, which makes Hardy Hendren’s insight and his committee’s grassroots efforts all the more impressive."

Tuesday, February 21, 2017

Ken Arrow (1921-2017)

How will we do Economics without Ken Arrow?

After living to a vigorous 95, he passed away today after a mercifully short illness.  He was in the hospital for about two weeks, then went home. He had ups and downs, but a week and a half ago I found him dressed and at his computer.

 Even when he was feeling poorly, he was always the smartest person in the room.

Update: here's the NY Times obit--Kenneth Arrow, Nobel-Winning Economist Whose Influence Spanned Decades, Dies at 95

Here's the Stanford obituary: Nobel Prize-winner Kenneth Arrow dies
Nobel Prize-winning economist Kenneth Arrow was a leading figure in the field of economic theory. He inspired generations of students through his decades-long teaching at Stanford.

And the Washington Post: Kenneth Arrow, Nobel laureate and seminal economist with wide impact, dies at 95

And Scott Kominers in Bloomberg: Kenneth Arrow Made Great Models, and Was One, by 

Here's Ken's nephew Larry Summers in the WSJ: Farewell to Kenneth Arrow, a Gentle Genius of Economics
Lawrence H. Summers remembers his uncle, Nobel Prize-winning economist Kenneth Arrow

Travel bans and rank order lists for the resident match

Residency programs have to submit their rank order lists of applicants by Feb 22. Should they try to match with doctors from countries subject to a possible renewed US travel ban?

Travel Ban Confusion Complicates Match Day Decisions

"UPDATE:  The Trump administration announced February 16 that it would discontinue its legal push in appeals court to reinstate their travel ban, but would instead issue a new, revised immigration order next week. No other details were given.
As medical school students look ahead to Match Day on Friday, March 17, some international students have additional anxiety in light of the uncertainty surrounding President Trump's executive order banning travel for people in seven Muslim-majority countries.
Residency programs also have to decide whether they will hold spots for students from the targeted countries who may not be allowed to come to the United States if legal rulings change.
First comes decision day February 22, when preferences must be ranked by both programs and students.
"Some applicants are concerned that the program directors won't rank them and there's concern from programs on whether the students can begin training on time," Mona Signer, president and CEO of the National Resident Matching Program (NRMP), told Medscape Medical News.
Trump's executive order, issued on January 27, aims to prevent citizens of seven majority-Muslim countries — Iran, Iraq, Libya, Somalia, Sudan, Syria, and Yemen — from entering the United States for 90 days. It suspended entry of all refugees for 120 days and barred refugees from Syria indefinitely. A federal judge has since imposed an emergency stay, halting the key parts of the executive order.
The administration's next step is unclear, but news sources have reported that Trump may take the fight to the Supreme Court or issue a revised order.
According to the Association of American Medical Colleges (AAMC), 260 medical students have applied to US residency programs from the seven countries the ban covers.
Questions include whether the ban will be reinstated, and, if it is reinstated, whether medical students would be exempted. Some worry the ban could spread to other countries. Last year, 3769 non-US citizens who studied medicine abroad matched into a US residency program, according to the American College of Physicians."

Monday, February 20, 2017

The European Network for Collaboration on Kidney Exchange Programmes

Here's the website of the European Network for Collaboration on Kidney Exchange Programmes (ENCKEP), whose goal is to widen and deepen kidney exchange in Europe.

It's still a work in progress, with gated areas.

For those who have registered, the slides from the recent Tallinn conference are here, with updates from Austria, Switzerland, Slovakia, Portugal, Netherlands, Poland, Czech Republic, Italy, Spain, France and the UK.

The conveners are Prof Joris VAN DE KLUNDERT at, and
Dr David MANLOVE at .

I'm a (non-European) supporter of this effort.

Sunday, February 19, 2017

Offensive trademarks

Can repugnant speech also be intellectual property? The Supreme Court has a case that touches on this. The NY Times has this recent story: Justices Appear Willing to Protect Offensive Trademarks

"The Supreme Court on Wednesday appeared deeply skeptical about the constitutionality of a federal law that denies protection to disparaging trademarks. Almost every member of the court indicated that the law was hard to reconcile with the First Amendment.
The court’s decision in the case, concerning an Asian-American dance-rock band called the Slants, will probably also effectively resolve a separate one in favor of the Washington Redskins football team.
The law denies federal trademark protection to messages that may disparage people, living or dead, along with “institutions, beliefs or national symbols.”
Malcolm L. Stewart, a deputy solicitor general, said the trademark law does not bar any speech, as the Slants remain free to continue to use their name. The law “places a reasonable limit on access to a government program rather than a restriction on speech,” he said, and so “does not violate the First Amendment.”
Continue reading the main story
But Justice Elena Kagan said that even government programs may not discriminate based on speakers’ viewpoints.
“The point is that I can say good things about something, but I can’t say bad things about something,” she said of the law. “And I would have thought that that was a fairly classic case of viewpoint discrimination.” Viewpoint discrimination by the government, the Supreme Court has said, is presumptively unconstitutional.
Justice Anthony M. Kennedy said the law interfered with free expression.
“We have a culture in which we have T-shirts and logos and rock bands and so forth that are expressing a point of view,” he said. “They are using the market to express views.”

Saturday, February 18, 2017

Memorial conference for Professor Reinhard Selten, April 28

Memorial conference for Professor Reinhard Selten
Friday, April 28th 2017, Bonn,

Reinhard Selten was a pioneer of the analysis of strategic interaction of both fully rational players (game theory) and boundedly rational humans (experimental economics). From 1984 until his death in 2016, he was associated with the University of Bonn, where he established one of the first experimental laboratories in economics. In 1994, Selten was awarded the Nobel Memorial Prize in Economic Sciences, together with John Harsanyi and John Nash, for their pioneering analysis of equilibria in the theory of non-cooperative games.
To honor his outstanding contributions to Economics, the University of Bonn and the University of Cologne are hosting a memorial conference for Reinhard Selten. The aim is to bring together renowned speakers presenting work connected to or inspired by Selten’s research. The conference will take place on Friday, April 28th 2017 at the Günnewig Hotel Bristol in Bonn, Germany. To help us with our planning, please register as soon as possible if you plan to attend!


Friday, February 17, 2017

Vatican statement on organ transplantation

When I posted recently about the Vatican conference on organ trafficking and transplant tourism I focused on the participation of China, and the reaction it drew.

Now I've had a closer second look at the conference statement  (whose title is Statement of the Pontifical Academy of Sciences Summit on Organ Trafficking and Transplant Tourism).

It's a very tough statement, which casts quite a broad net when talking about "crimes against humanity." Here's the opening paragraph:

"In accordance with the Resolutions of the United Nations and the World Health Assembly, the 2015 Vatican Summit of Mayors from the major cities of the world, the 2014 Joint Declaration of faith leaders against modern slavery, and the Magisterium of Pope Francis, who in June 2016, at the Judges’ Summit on Human Trafficking and Organized Crime, stated that organ trafficking and human trafficking for the purpose of organ removal are “true crimes against humanity [that] need to be recognized as such by all religious, political and social leaders, and by national and international legislation,” we, the undersigned participants of the Pontifical Academy of Sciences Summit on Organ Trafficking, resolve to combat these crimes against humanity through comprehensive efforts that involve all stakeholders around the world."

Here's the paragraph defining what those crimes against humanity are, which to my eye seems to conflate three very different things. It is number 1 in their list of recommendations.

"That all nations and all cultures recognize human trafficking for the purpose of organ removal and organ trafficking, which include the use of organs from executed prisoners and payments to donors or the next of kin of deceased donors, as crimes that should be condemned worldwide and legally prosecuted at the national and international level."

That is, if I read the full statement correctly (you should read it yourself), they are proposing that 

  1. taking organs from executed prisoners, 
  2. making payments to living donors, and 
  3. making payments to next of kin of deceased donors 

should all be considered crimes against humanity.  

Incidentally, the phrase "crimes against humanity"  is one that I hear most often in the context of genocide, although I recognize that it is also used for other horrific crimes that target populations.

I am not encouraged that this will lead to a sensible discussion about either incentives for donation or (even) removing financial disincentives.

Thursday, February 16, 2017

Doctor assisted suicide in Colorado: repugnance outlives legalization

You can figure out much of this story from the headline (but there's more): Colorado’s aid-in-dying law in disarray as big Catholic health systems opt out

"A third big health system in the state, HealthONE, has decided it won’t dispense life-terminating medications or allow patients to take them on the premises of its eight hospitals. But HealthONE, which is not faith-based, won’t impose similar restrictions on its doctors. A spokeswoman declined to provide details.

"The state’s law, which became effective last month, requires that such patients be 18 or older, have six months or less to live, be mentally competent, and ask for aid in dying twice over 15 days, in addition to a separate written request.

“Everyone is in a mad scramble figuring out what they’re doing to do and how they’re going to do it,” said Jennifer Moore Ballentine, president of The Iris Project, a Colorado consulting firm that is running a series of seminars on the new law over the next few weeks.

Colorado’s aid-in-dying law contains “conscience” provisions allowing physicians, nurses, and pharmacists to “opt out” of participating. Health systems can also bar the practice on their premises. Other states where aid in dying has become legal — Oregon, Washington, California, Vermont, and Montana — have similar provisions, and Catholic health care systems in those states have taken advantage of it.

But the Colorado law specifically states that health systems can’t prohibit doctors who work for them from discussing end-of-life options with patients or writing prescriptions to be taken off-site. This provision was crafted to prevent health systems from erecting barriers to access; only Vermont has a similar rule, but it doesn’t have a heavy concentration of Catholic hospitals.

Advocates for Colorado’s law say the two big Catholic health systems may be testing that provision."

And in Vermont: Vermont governor discloses his father used state’s end-of-life law

Wednesday, February 15, 2017

The politics of assisted suicide / death with dignity

My discussions of assisted suicide / death with dignity as a repugnant transaction included a recent post noting that in the most recent elections, Colorado joined the states (including California) that allow physicians to prescribe lethal drugs to mentally fit, terminally ill adults who want to end their lives.

It's therefore interesting to note that Supreme Court nominee Judge Neil M. Gorsuch has a 2006 book The Future of Assisted Suicide and Euthanasia suggesting that this is never justified. The publisher's website says:
 “The Future of Assisted Suicide and Euthanasia provides the most thorough overview of the ethical and legal issues raised by assisted suicide and euthanasia--as well as the most comprehensive argument against their legalization--ever published.”

In other (related) news, 
House committee moves to block D.C.’s assisted-suicide law

"In a rare step, a House committee voted 22 to 14 Monday night to block a law that would make assisted suicide legal in the District, opening a new front in the conflict between congressional Republicans and the overwhelmingly Democratic capital city.

It was one of only a handful of times in the four-decade history of D.C. home rule that members of Congress have tried to use their constitutional power to overturn a city law, and the first attempt since the GOP took control of both Congress and the White House in January.

The vote was largely along party lines, as 21 Republicans and one Democrat, Rep. Jim Cooper of Tennessee, voted yes while 13 Democrats and one Republican, Darrell Issa of California, voted no."

Tuesday, February 14, 2017

An interview about travel bans, and universities, and science...

„Grenzschließung wäre eine große Schande“

PREMIUMStanford-Professor und Nobelpreisträger Alvin Roth sorgt sich um den Forschungsstandort USA. Im Interview spricht er über die Folgen von Donald Trumps Einreiseverboten und die Universitäten als Spiegelbild Amerikas.

Im Jahr 2012 gewann Alvin Roth den Nobelpreis für Wirtschaftswissenschaften. Der 65-Jährige, der an der Universität Stanford in Kalifornien lehrt, macht sich Sorgen um den Forschungsstandort Amerika.
It's in German, and it's gated, but the interviewer asked me what I thought the effects of travel bans and immigration bans would be on the U.S. I replied that universities are in some ways a microcosm of the US, in that both have thrived by being open to participation from people around the world.  Universities, American science, and America will all suffer if we cut ourselves off from the rest of the world.

Valentine's day

What do Valentine's day and National organ donor day have in common?  Well...hearts.  And love. And the same day...

February 14: National Donor Day
Focused on five points of life: organs, tissues, marrow, platelets, and blood. Many nonprofit health organizations sponsor blood and marrow drives and organ/tissue sign-ups across the nation. National Donor Day was started in 1998 by the Saturn Corporation and its United Auto Workers partner with the support of the U.S. Department of Health and Human Services and many nonprofit health organizations.

February 14 is National Donor Day

Each year, February 14th is significant for more than just Valentine's Day.  Today is designated as National Donor Day focusing on the "five points of life"  organ, tissue, marrow, platelets, and blood donation.  Donation drives are held throughout February nationwide.  Be a hero!  Be a donor!  And THANK YOU!


Valentine's day celebration is also repugnant in some places:
Pakistan bans Valentine's Day for being unIslamic
Ban on the traditional Christian celebration of love follows a similar move by Saudi Arabia
"Pakistan has become the latest country to ban Valentine's Day.
It has prohibited all public celebrations and any media coverage because the celebration is not part of Muslim traditions."

And (I'm sorry to say) this: Mob Kills Eloped Lovers After Storming Afghan Police Station

Monday, February 13, 2017

First kidney exchange in Vietnam

The first kidney exchange in Vietnam was performed last month. It was a two-way exchange in Ho Chi Minh City: VietNamNet has the story.

VN doctors perform first paired-kidney exchange transplant
Doctors at Cho Ray Hospital in HCM City have successfully performed the country’s first living paired-kidney exchange transplant.

"The surgery was successful and the four patients are in stable condition, according to Dr Thai Minh Sam, head of the hospital’s urology department.
Nguyen Thi Hue, 58, volunteered to donate one of her kidneys to her daughter Vu Thi Hue, 32, from Kien Giang province who had end-stage renal disease and has been on dialysis since June 2014.
But she and her daughter did not match well, Sam said at a press meeting held yesterday.
Another pair in the same situation, Le Thi Anh Hong, 31, from Dak Nong province with end-stage renal disease, has been on dialysis since April 2015.
Hong’s stepfather, Truong Ngoc Xuan, 51, could not donate one of his own kidneys to his daughter as they were incompatible.
Paired donation matches an incompatible donor and recipient to another pair in the same situation.
Doctors at Cho Ray Hospital carefully consulted opinions from leading experts in kidney transplant and explained the procedure to two donor/recipient pairs who agreed to undergo paired kidney exchange.
Hue’s mother gave one of her own kidneys to Hong. In exchange, Hong’s stepfather, Xuan, donated one of his own kidneys to Hue.
Doctors removed the kidneys from the donors in the morning and transplanted them in the recipients on January 11."

Sunday, February 12, 2017

Living kidney donation in Israel: a competition between two towns

Ran Shorrer points me to this story...

תחרות בין ההתנחלויות: מי יתרום יותר איברים לזרים גמורים

עשרות מתיישבים החליטו לתרום את אחת הכליות שלהם לאדם זר, ללא תמורה. המעשה האצילי הפך אפילו לסוג של תחרות בין היישובים. "ביצהר מובילים עם 10 תורמים, ואנחנו רק שלושה", מסביר תורם מאיתמר. היוזמה מדהימה, אך התרומות לא מיועדות באמת לכל אחד: מרביתן ליהודים בלבד

Google translate:

Competition between the settlements who contribute more organs to complete strangers?

Dozens of settlers decided to donate one of their kidneys to a stranger, for no consideration. Even the noblest deed became a kind of competition between communities. "Yitzhar lead with 10 donors, and we are only three," says Itamar contributor. 

Saturday, February 11, 2017

Friday, February 10, 2017

Vatican conference on organ trafficking and transplant tourism

A recent meeting at the Pontifical Academy of Sciences of the Vatican:
Summit on Organ Trafficking and Transplant Tourism resulted in a statement and a number of news stories.  Here are several that caught my eye, with divergent views on the situation in China and how it is changing:

From the NY Times: Debate Flares Over China’s Inclusion at Vatican Organ Trafficking Meeting
"China has admitted that it extracted organs from death row prisoners for decades, in what critics have called a serious violation of the rights of inmates who cannot give genuine consent. Since Jan. 1, 2015, Chinese officials have said they no longer use prisoners’ organs, though doubts persist.

“We urge the summit to consider the plight of incarcerated prisoners in China who are treated as expendable human organ banks,” wrote the 11 signatories, who included Wendy Rogers of Macquarie University in Australia; Arthur Caplan of the New York University Langone Medical Center; David Matas and David Kilgour, both Canadian human rights lawyers; and Enver Tohti, a former surgeon from the western Chinese region of Xinjiang."

China moves to stop taking organs from prisoners, WHO says
"The World Health Organization says China has taken steps to end its once-widespread practice of harvesting organs from executed prisoners but that it’s impossible to know what is happening across the entire country.

At a Vatican conference on organ trafficking this week, a former top Chinese official said the country had stopped its unethical program, but critics remain unconvinced.

In an interview Thursday, WHO’s Jose Ramon Nunez Pena said he personally visited about 20 hospitals in China last year and believes the country has reformed. But he acknowledged that it was still possible “there may still be hidden things going on.” China has more than 1 million medical centers, although only 169 are authorized to do transplants.

Nunez Pena said he had seen data including organ transplant registries and was convinced the country was now shifting away from illegally harvesting organs.

“What is clear to me is that they’re changing,” he said. “But in a country as huge as China, we can’t know everything.”
"Campbell Fraser, an organ trafficking researcher at Griffith University in Australia, agreed the trends over the past few years have shown a drop in the number of foreigners going to China for transplants and an increase of organ seekers heading to the Middle East.

At a press conference at the Chinese Embassy in Italy following the two-day Vatican organ conference, Fraser said migrants — including Syrians, Somalis and Eritreans — sometimes resort to selling off a kidney to pay traffickers to get them or their families to Europe.

Egypt is where the biggest problem is at the moment,” he said, adding that it has the best medical facilities in the region and can perform the live donor surgeries.

He estimated as many as 10 such illicit transplants could be happening per week, though he had no statistics and said he based his research largely on anecdotal information from recipients, law enforcement, doctors and even some organ “brokers.”

Fraser said he has access to transplant patient “chat boards” because he himself had a kidney transplant in his native Australia in 2003.

Nunez Pena said it was likely that organ trafficking would find its way to conflict-plagued regions.

“We’re hearing about a lot of problems in Egypt, Pakistan and the Philippines,” he said, predicting that authorities were poised to break up an organ smuggling ring in Egypt in the next few weeks. “Wherever you have vulnerable people, you will see these kinds of problems.”


From Science:

Study retraction reignites concern over China’s possible use of prisoner organs

A journal has decided to retract a 2016 study because of concerns that its data on the safety of liver transplantation involved organs sourced from executed prisoners in China. The action, taken despite a denial by the study’s authors that such organs were used, comes after clinical ethicist Wendy Rogers of Macquarie University in Sydney, Australia, and colleagues authored a letter to the editor of Liver International on 30 January, calling for the paper’s retraction in the “absence of credible evidence of ethical sourcing of organs.”
For years, Chinese officials have come under fire for allegedly allowing the use of organs from executed prisoners for transplants, including for foreigners coming to the country for so-called medical tourism. In January 2015, it explicitly banned the practice and set up a volunteer donation system, but doubts persist that much has changed.
The disputed study—published online in October 2016—analyzed 563 consecutive liver transplantations performed before the ban (from April 2010 to October 2014) at a medical center in China. Suspicious, Rogers organized the protest letter to the journal. “Publication of data from prisoners is ethically inappropriate given that it [is] not possible to ensure that the prisoners freely agreed either to donate their organs, or to be included [in] a research program,” she tells ScienceInsider.

Thursday, February 9, 2017

Ethicists on compensation for blood stem cells (aka bone marrow aka hematopoietic cells) donors

The site hosts a letter signed by many ethicists opposing an amendment to the National Organ Transplant Act to reverse the court decision outlawing payment to blood stem cell donors. (Got that? the letter is pro compensation.)

The site is full of interesting related links.

Here's the site's front page:
This site houses an open letter to Shelley Grant of the Department of Health and Human Services regarding a proposed amendment to the National Organ Transplant Act that would effectively outlaw offering compensation for hematopoietic cells donation. The signatories are professional ethicists who believe that the proposed amendment is unethical and should be rejected.
The details of the proposed amendment can be found here.
The case that prompted the amendment, Flynn v. Holder, is explained here.

Peter M. Jaworski conceived of the letter and is its primary author.
David Faraci was a major contributor to the letter and maintains the website.

Here's a link to Hemeos, a startup service for matching stem cell donors to patients, which plans to compensate donors.